Saturday, January 10, 2009

Awful time with Dalton tonight....ugh

We were getting ready to go to bed and he got on the couch and all of a sudden he started screaming...I mean screaming...I picked him up and his leg was in this knee upward sort of position and he was screaming and had a hold of my shirt just gripping it. Huge tears were rolling down his cheeks and he was was horrible. Hunter started to run to the bedroom to get Joey, who was taking out his contacts, and Joey met him in the hall..he was coming to see what was going on. Dalton would not go to Joey..was terrified to move, still just bawling. Joey finally picked him up and carried him to our bedroom and sat him on the bed. He was still carrying on something awful...saying that it hurts and it popped. At this point Hunter looked at me and his face was all red and he started sobbing. It's so hard for him to see Dalton hurting like that. I ran to the kitchen and got him some motrin...not sure if it really would help or not...but I gave him some and at that point Joey started getting out clothes and said he guessed we would just have to take him to the hospital..we didn't know what else to do with him. My heart just was so awful seeing him hurting but not knowing what to do to make it stop. Then it got to a point where I think it had really stopped hurting but he was scared to move it for fear it would hurt. I asked him if he wanted to get in the big tub (the jacuzzi in our bathroom) and he I got him laid back and got his boxers off and then he said he thought he could move his "weg"..and he did. Now he's fine it never happened. Hunter is completely traumatized by the whole thing. It's just gotten so much worse in the past week, especially at night. During the day at times he'll run and play like it's nobody's business but then he pays for it. I am so afraid of what is going to happen because it absolutely is gutwrenching to see him hurting like he did tonight. He's on the couch trying to go to sleep now...We are packing the stroller so he's going to have to ride in it while we do stuff in Charleston..I just can't chance him hurting like that. I feel like at this point staying off of that leg some might be the best thing for us. Please pray for us...tonight was so scary.


  1. I'm so sorry, girl, that's very very scary! Totally understand about the park today, but you've got to do what's best for Dalton. ((((((((((hugs))))))))))))))

  2. That must have been so scary for you. It sounds like keeping him off of it for a while is a good idea. Poor Dalton! (((hugs))) to both of you!

  3. Hello,

    I happened upon your blog because I have a Google alert for Perthes Disease. My son, who is 7.5, has Perthes as well. He was diagnosed just before he turned six. I am happy to say that he had what I guess turned out to be a mild case, because the only treatment he received was stretching exercises, activity restrictions, and occasional rounds of Naproxen. He did have a lot of pain, and once we even had an urgent care visit for stomach pain, which ended up being referred pain from his hip.

    Anyway, I just wanted to reassure you that you will get through this! In July, they said they saw bone regrowth on my son's x-rays, so he is off activity restrictions, and even playing hockey! We go back to the doctor this week, but he has not been complaining of much pain and he hasn't been limping either.

    There are a couple of good discussion groups online that you can visit, and I'd be glad to talk with you more as someone who has been through it. My e-mail is

    Best of luck to your family. You probably already know that your son's age is on his side. Have you started doing stretching exercises? Have they recommended swimming? Have they put your son on Naproxen? Our doctor liked that over anything else because it was twice a day instead of three times a day.

    My son did use a stroller even though he was older when diagnosed, and sometimes he used a wheelchair if we were out at a museum or something. Whatever you can do to keep his activity down is good. But try to get him swimming because that is really good for him, plus it burns off energy! They told us that the activity restrictions are to keep him comfortable, not to prevent damage, because the damage will happen no matter what and you can't stop that. Basically time is the only thing that will solve the problem. I hope it's a message of hope, though, to hear about another little boy who progressed through this faster than expected and is now running, jumping, and playing hockey!

    Good luck to you! Karla Block