Friday, September 25, 2009

Awesome update!

We had PT yesterday and Mrs. Stacy measured Dalton's ROM and he is within NORMAL RANGES on all of his ROM numbers!!!! HOLLA!! Every single one was in a normal range. Internal rotation was about 5 degrees less than "normal" but she said that anything off 5 degrees was still considered normal. Our goal is to keep it in normal ranges now. He has xrays next week and I'll be sending those, along with his super ROM #s, to Dr. Standard. I'm tickled over his ROM but I know that his xrays could also bring us trouble if they look much worse. Hopefully that won't be the case though. I'll update once his xrays are completed or once I hear back from Dr. Standard.

Thanks so much for all the prayers! We appreciate them so much!

Thursday, September 17, 2009

Couple of Videos

This video features my online pal, Sandi, and her daughter Rachael. Rachael had perthes and had an external fixator. This video also shows Dalton's super awesome hip doctor, Dr. Shawn Standard. Sandi was gracious enough to invite us to her home for a perthes pool party last month when we were up North for our appointment.

This next video I will never forget...Just after Dalton was diagnosed with perthes I was googling and came across this on You Tube. I remember so vividly watching this and just bawling my eyes out. Tonight as I was on You Tube trying to get the embedded link to Dr. Standard's video I came across this video again. I never put two and two together, but this video is of a child named Tanner and I have come to know his mom, Alice, through our online perthes support group. Tanner is an amazing little boy. What an awesome video!

As for us, still hanging in there. Dalton has his ROM measured next week and his xrays the first week in October. Praying for good xrays and an increase in ROM!

Thursday, September 10, 2009

sir limps a lot

We are going on a month and a half or so of *NO* night time pain. ***knocking on wood*** I don't have any idea where it went or why but hey, we are sleeping so WOOOOT!!! He is still complaining of daytime's hurting or aching..he is constantly wanting to put it up on something bc he says it hurts. The limp seems to be more pronounced at times but he still keeps on going and playing for the most part. Some days he wants his wheel chair and he'll ride in it around in the house..I think some of it is just playing, but then there are some days that he truly is sore. Since Dalton is so young it's hard to get him to explain to me what the pain is like so I don't know if it aches or if it's sharp pains or a pulled muscle pain or pain like a "catch" idea and that's just frustrating for me bc I wish I knew how it felt for him. He's such a trooper though, so independent! Poor baby is sick right now, not sure with what..he started complaining this afternoon that he had a headache and I felt his forehead and he was warm and his temp was 101.3. I asked him later after giving him meds for the fever and headache did anything hurt and he said "yes, my leg right here" and pointed to an area on his right thigh. He is still complaining of some left leg pain. I haven't heard from Dr. Standard yet but we have a chat coming up on 9/17 so I plan to send him a copy via email of Dalton's latest xrays and let him see if he sees any issue in that hip or if it's just from him favoring it.

In other news, school is going very well for us. Dalton loves doing school and is such a bright little guy. He can be a handful at times but he is absolutely the sweetest little thing. I just love him to pieces. I wish so bad that he wasn't going through this with his leg that he could run and jump and play without pain like other kids his age, but I know there's a reason for it all.

Here's a picture of him making a little lapbook in school with the letter "Gg".

Wednesday, September 2, 2009

hanging in there

Not much to report...Night time pain is *(hopefully)* gone for now. He's only woke up like once in the past month with his leg hurting, BUT now he complains of daytime pain and needs to "take a rest" several times. Not sure which would be better..I guess since he's sleeping better it's better for it to hurt more during the day. The past couple of days he's complained with his left leg hurting too so I did email Dr. Standard to see if he could look at the last xrays to see if there is anything that stands out in his left hip. I think it's probably just because of him putting the majority of his weight on his left leg.

So that's about it...he at least seems to be no worse..guess that's a good thing.