Wednesday, August 19, 2009

Home, tired, & thankful

Thanks, Allison, for updating for me.

Basically everything is just what she said. He said the xrays were "looking good" but that's because he did one extra xray (abduction style) and said that his pelvis was still in line and not responding by turning due to the LCPD. His xrays don't look any worse than the ones 6 weeks ago. His ROM was down a tad but Dr. Standard wasn't too concerned..said that there will be days that it will be down, either due to inflammation, activity level, or whatever. He said we are in a "touch and go" situation that at any point we may have to intervene and that's why right now he wants to see us every 6 weeks. He did agree to let us have xrays done here and have them sent up to him along with a report from PT regarding his ROM numbers. Based on that we'll see if it buys us another 6 weeks or not. I told him about the misery that is the abduction pillow and he told me to try it some during the day...stretch him and put the pillow on and let him watch 30 mins of tv a couple of times a day. He asid even an hour on is better than none at all.

So as it stands he have xrays the first week in October. Dr. Standard and I will talk via phone or email and he'll decide if he wants us to come on to Baltimore for the tenotomy (he calls it soft tissue release..where they clip tendons in the hip area to loosen the leg up) or if we can wait it out for 6 more weeks. Right now our next appt is schedule for 12/7.

Just keep sending up prayers and good thoughts our way. We are definetly hoping to get out of this without any surgery at all!

Monday, August 17, 2009

8/17 Appt Update

This is Allison updating for Lori....

No surgery right now. Xrays looking good. Pelvis still staying straight...nothing looks any worse than 6 weeks ago. ROM down, but said that was normal to be down from time to time. Keep doing what we are doing. In 6 weeks we'll do xrays here and send them and ROM up to him. If everything looks ok, we'll see him in 6 more weeks. Next appt is set for November 30th.

Lori will update more tonight or tomorrow.

Thursday, August 13, 2009

Baltimore Bound

Heading out tomorrow....hoping for decent xrays, NO surgery, and all that stuff.

Possibly getting together w/some of the girls (and kids) from our perthes board on Sunday. I'm really excited about getting to meet some of the ladies that helped me and talked to me when Dalton was first diagnosed...They helped me keep my sanity during those first few months while we saw different doctors regarding Dalton's situation..and they still continue to be there always with an encouraging word.

Dalton's PT went pretty good today...he got his ROM measured again and it was back up just a little over what it was the last time it was measured. Not sure if it will be enough to avoid surgery this time but hopefully so!

We've had 3 full weeks of no night time pain and low and behold it started back up tonight. There is just no rhyme or reason to it!'s so frustrating.

Wish us luck in Baltimore...we plan on doing a little more sight seeing while we are there..either in DC or the Amish Country (Lancaster, PA) or both. I'll either update the blog after the appointment before we head home or I'll have Allison do it for me. Our appt is at 8:15 Monday morning.

Your thoughts and prayers are so appreciated!!

Monday, August 10, 2009

Happy Birthday Dalton!!!!!!!!!!

Today my baby boy turns 5! Seems like yesterday he was just a tiny baby, but I imagine all parents have this same feeling. Time moves on once you have children. I just hope life will slow down a little for us. Dalton woke up happy but when his feet hit the floor he said he hurt and he decided he didn't want to go to Chuck E Cheese...then later he asked me for some medicine and said could we go. I believe this is the first time he's ever asked for medicine. His sleeping has improved..I've not wanted to jinx him..but it's been almost 3 weeks now since he's slept through the night. I don't know if the prednisone he was on for the croup kick started something or if possibly we have some re-growth or what. His running and walking look better to me most of the time..but he still seems really tight. I'm terrified that we could be facing surgery this time next week but today I can't and won't let my mind go there. Today I am celebrating with Dalton and we are going to have a blast at Chuck E!

And here's a LOL..this morning he woke up and once I told him Happy Birthday and everything he pulled the covers back in the bed and looked down at his legs and he said "I'm checking to see if my legs have grown bigger." haha He must have taken my "you're growing up" that I said yesterday literally! ROFL!!!