First off, our appointment has been changed from 7/6 to 6/29. Dr. Standard is on vacation and they didn't want our appointment to be pushed out so we are in a week earlier.
As for Dalton he's still doing about the same. We have two or 3 good nights a week and then we have a night, like last night, that he tosses and turns a good bit of the night...crying out and reaching for his leg, dozing back off, repeating all this again. Then we'll have a night like last Thursday that he cried basically non-stop until about 2am. He got into pain about 11pm and I tried everything I knew to do...rubbing his leg, motrin, tylenol, warm bath w/lavendar...I even gave him ben@dryl to help him sleep....nothing really seemed to work until at some point he just fell asleep..I'm sure the pain stopped for him to go to sleep but it took a good while.
Anyway....we are still doing PT twice a week as well as exercises here at home the rest of the time. We are having VBS at church this week for 3 hours in the mornings and it's been a busy week.
I've had several people email and ask me about him since I've not updated lately. Thanks for checking in on us.