We got the rx for both of the medicines that I talked about in the last post. The "V" didn't work AT ALL...neither did the "L". Though, I think that the "L" might work in some cases but probably not if he's in a lot of pain. Anyway, tonight he has gone to sleep just fine with no issues. I stretched his leg good for him before bed hoping it might help. There's really no way of knowing what helps and what doesn't. There are times that I think doing his stretching before bed makes him hurt but I don't know. It still seems that there is no reasoning or pattern behind when he hurts. He can be very active and I will expect a lot of pain and he does ok and then a day that he's not overly active he's in bad pain..and vice versa..sometimes after a lot of activity he's in a lot of pain...so I don't know. All I know is that tonight he's been asleep since about 10pm and here it is 2:30am and I'm still awake. I think I'm so messed up with my sleeping that there is no hope for me. I am tired but just haven't been able to fall asleep yet.
We leave for Baltimore early next Saturday morning with plans to take the boys to DC on Sunday to do some touristy stuff. Dalton's appointment is at noon on Monday.
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Rubin Institute For Advanced Orthopedics (aka..where Dalton goes to the doctor!)
About Dalton
Dalton was diagnosed with Legg Calve Perthes Disease (LCPD) on 12/27/08 at age 4. Check back here for updates on his treatments and his progress.
We are a family of 4 from Upstate SC. Our family consists of me (Lori), my husband Joey, and we have two wonderful sons...Hunter is 7 and Dalton is 4. We have a tiny little chi-weenie named Katie.
We know that God will see us through this. A dear friend reminded me of this Bible verse Romans 8:28 "All things work together for the good..."
Please keep us in your prayers.
We are a family of 4 from Upstate SC. Our family consists of me (Lori), my husband Joey, and we have two wonderful sons...Hunter is 7 and Dalton is 4. We have a tiny little chi-weenie named Katie.
We know that God will see us through this. A dear friend reminded me of this Bible verse Romans 8:28 "All things work together for the good..."
Please keep us in your prayers.
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1st week of December
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appointment to be scheduled mid-late January to see Dr. S. in Baltimore
1st week of December
Phone/email consult with Dr. Standard
appointment to be scheduled mid-late January to see Dr. S. in Baltimore
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Sorry to hear that the Rx didn't work. I was really hoping they would - bummer. Maybe something else will though - don't give up on the idea. I work at a hospital and it's surprising how some strong pain meds don't work for some and they practically knock others out. But usually people are able to find one that works after trialing a few. I understand about the sleep problem for you too! I've gone through that with Simon - not with the Perthes as much but his earlier health issues and it does mess you up....and I was always in a fog during the day. No easy answers except try to get some help when you need a break (even to sleep!) Take care and our thoughts are with you and Dalton.
ReplyDeleteLori, this is a very nice blog, and Dalton and his brother are awesome. Perthes is frustrating and upsetting, for sure. Just take one day at a time. It will pass. Of all my 4 children, I think Scott is the most compassionate, and it's due to what he had to endure with the brace, exercises and pain. Take care. Barb
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