Looks like that's where we are heading. The dr that I spoke of in my previous post replied to me...I had actually sent him the email the very end of March but somehow it got tangled between two of his email addresses so he replied to me again last night. Here is what the email says:
"I have reviewed Dalton's x-rays. Although Dalton is in a favorable age group for perthes- he has significant collapse and lateral shifting of his femoral head out of the cup of the hip. His hip would be categorized a Herring B/C - that means doing nothing is not a good option for him. The exact treatment plan would depend on his physical exam- the treatment could be as easy as a soft tissue release around the hip performed as an outpatient with subsequent stretching exercises and bracing to as complex as a hip distraction surgery where a external fixator is placed on his hip to unload the collapsing femoral head. I recommend that you and Dalton come for an evaluation in Baltimore- Sinai Hospital. Call Barbara at 410-601-9570 and schedule an appointment - since perthes is a time sensitive condition, Barbara will prioritize your visit and work you in as soon as possible.
Shawn C. Standard MD"
Wow. I am shocked, sad, hopeful..I just feel so many things. A million things are racing through my mind. I guess in reality I fully expected him to come back and say that he agreed with what we had been told due to Dalton's age he would do well without intervention. If you look at the 3rd xray picture in this post (click on it to pull it up big) you can see exactly where there is "lateral shifting of his femoral head out of the cup of the hip". This is a bad thing and needs to be addressed...however, I don't understand why neither of the two ped orthos we have seen in the past month have mentioned it. We have tons of questions, naturally. This dr. is THE dr for perthes...possibly in the world. Tons of people from all over see him for this. This is one of his specialized areas.
I called Dr. Standard's assistant, Barbara, this morning and as soon as I said my name she asked "Dalton? Yes, Yes, Dr. Standarad has told me about Dalton". I just about lost it...for him to have us on his mind..to come to work and tell Barbara that we might be calling..he must be a truly caring person. I am awaiting a phone call from Barbara this afternoon so that she can go over any questions I have regarding the appt and then we will set something up. She said the appt would be on a Thurs a.m. and right now we are looking at 5/7 or 5/21.
We most likely will have some tough decisions to make. Here is a picture of the external fixator that he mentioned in his reply to me.
The site of this thing makes me sick to my stomach...to think that this has even been suggested. However, it's not a definite that this will have to be done...and quite honestly, we might turn down this option for Dalton right now and go for something less invasive.
Just keep us in your prayers. I will update once we know when the appt is.