Wednesday, November 18, 2009

Long time no blog!

It's been over a month since my last entry. Dalton is still rocking along doing mostly fine. If he over does it (like lots of running, climbing at the park, etc) then he's really stiff afterwards. His nighttime pain is basically nonexistent right now and I hope it stays that way bc it is the worst it seems. We'll have PT week after next with ROM numbers and xrays are to follow. Then we should hear from Dr. S. and go from there. Fingers crossed!


  1. Thank you so much for maintaining this blog--my daughter was diagnosed on Friday and I am still trying to figure out what the heck this whole thing is about.

    Great to read this and follow some of the links so I can begin to get a sense of what we can expect.

  2. Oh thanks for stopping by my blog to commnet. Gillian is 5, my third child. I will probably do a separate post on the facts and my questions, etc. coming up later so if you get a chance to respond there it would be great.

  3. Hey girl, just popping in to say hello and let you know I've been thinking about you and Dalton! (((hugs)))