Hi Lori and Dalton. Sorry for the stressful news and that pillow contraption! I know Simon was stressed at first at night with the petrie casts - but after several days could move all around in bed with them. They key is to not cover them with blankets! We made a "pillow cave" all around simon so his leg could rest on it when he was on his side. I think there are pics on my blog from April. I know the emotions are just up and down with this illness! We have no idea how simon is doing until his next appt. Sept 1st. He is barely symtpomatic so it's easy to ignore. But I'm afraid the bomb will drop with the xrays.... take care and keep in touch. Simon's mom
Dalton was diagnosed with Legg Calve Perthes Disease (LCPD) on 12/27/08 at age 4. Check back here for updates on his treatments and his progress.
We are a family of 4 from Upstate SC. Our family consists of me (Lori), my husband Joey, and we have two wonderful sons...Hunter is 7 and Dalton is 4. We have a tiny little chi-weenie named Katie.
We know that God will see us through this. A dear friend reminded me of this Bible verse Romans 8:28 "All things work together for the good..."
Please keep us in your prayers.
Upcoming Appointments
xrays/ROM update 1st week of December Phone/email consult with Dr. Standard
appointment to be scheduled mid-late January to see Dr. S. in Baltimore
Hi Lori and Dalton. Sorry for the stressful news and that pillow contraption! I know Simon was stressed at first at night with the petrie casts - but after several days could move all around in bed with them. They key is to not cover them with blankets! We made a "pillow cave" all around simon so his leg could rest on it when he was on his side. I think there are pics on my blog from April. I know the emotions are just up and down with this illness! We have no idea how simon is doing until his next appt. Sept 1st. He is barely symtpomatic so it's easy to ignore. But I'm afraid the bomb will drop with the xrays.... take care and keep in touch.
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Just wanted to pop in and tell you that I'm thinking of you and Dalton!
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