Monday, November 21, 2011

WOW....

Where does the time go? I could have sworn that I updated this blog last year in August (2010) when we saw Dr. Standard for the last time. At our last visit Dr. Standard was pleased with the xrays and how the hip was back in the socket. This is all in thanks to the physical therapy and constant stretching we did at home. He told us to go home and to let Dalton be a little boy...let him run, jump, climb, etc. So far so good with all of that. For a while we dealt with him being very clumsy, due to not using his right leg very much...we also still dealt with pain at times, mostly due to usasge. We have not dealt with the nights of screaming and waking up with pain in a couple of years. I am so thankful to be past that point with Dalton. That was the worse of it all was for him to hurt so bad and nothing really help the pain, loritab and valium included. He still has a little pain, here and there, mostly weather related or when he has been very active then he will limp a little or complain that it hurts. We also are still dealing with weight issues...the weight has not fallen off like we had hoped that it would once he went back to normal activity. I think, in part, it was that we dealt with an increase in appetite due to the steroids he was on and off of, as well as just getting into a habit of eating more (partly from steroids, partly from boredom), not to mention not being able to be active and how that puts the weight on..Now he is very active, but still "chubby." I am trying to work with him on that, but it is hard.

If you are finding this blog because your child has been diagnosed, we have a Facebook group and the ladies there have a wealth of knowledge to share. Please message me for info... Lori McLane Land on Facebook.
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3 comments:

  1. belinfanteNovember 24, 2011 at 9:02 AM

    i had Perthes as a child for 3 years, body cast traction,braces, wheelchairs , crutches, ..i do believe this disorder is a result of growth spurts and trauma to the hip, as i was an extremely active child. i do not believe this to be genetic other than possibly an inherent weakness in the bone,excessive activity and trauma i believe is the cause, w excellent Dr Gene K Bruce in California , today other than very mild arthritis, i do not notice it, after running a few miles i can feel the flat surface on my femur, but absolutely nothing to be remotely concerned with,,, good luck Dalton, you will be 100% fine..

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  2. AnonymousApril 3, 2012 at 5:09 PM

    Just ran across your blog and wanted to write a few encouraging words.

    I was diagnosed at the age of 5 and wore two types of braces through my ordeal. Later, as I walked with a slight limp and right before my growth spurt, I underwent surgery which involved destroying the growth plates in my good knee, which allowed the other slightly shorter leg to catch up, evening out my hips.

    I eventually went on to play professional basketball for 7 years and was recently inducted into my college's athletic hall of fame.

    Now at the age of 43, there is still some pain but usually after a long walk or run, but I'll muscle through it until hip replacement becomes the only alternative to the pain.

    Your boy will develop a strong will and even tougher heart. It will separate him from his peers. Good luck to you and your fam.

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  3. UnknownMarch 11, 2016 at 3:41 PM

    Can someone get ahold of me my son was diagnosed with this disease and he just turned 4 I would like to talk to other parents I feel lost please email me balkwellchristina023@gmail.com

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